Oscar Edwards & Daniel Heard
BBC News
Motor neurone disease is an uncommon condition that mainly affects people in their 60s and 70s.
The family of a boy living with motor neurone disease have said it was a “massive shock” for him to be diagnosed at the age of 13.
Kyle Sieniawski, from Pontypridd, Rhondda Cynon Taf, started to lose mobility in his left arm last year before experiencing other neurological symptoms.
Almost a year after she first noticed the symptoms, Kyle’s mum told BBC Radio Wales Breakfast that his conditions had deteriorated to a point where he can no longer feed himself.
Motor neurone disease is an uncommon condition that mainly affects people in their 60s and 70s.
Kyle was diagnosed with MND on 17 January – almost a year after his mum Melanie first noticed symptoms.
“He wasn’t walking straight and was using one arm to support the other,” she said.
Kyle was initially taken to the Royal Glamorgan Hospital in Rhondda Cynon Taf for tests followed by an MRI scan.
Doctors initially thought he had enterovirus which is an infection that can cause illness in babies, children, and teens.
Family photo
Kyle’s family have started a fundraising pa
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